Clinical Research Assistant - Work Study

Position Purpose: One work/study student is needed to assist in the coordination of our Turner syndrome and X&Y Variations multidisciplinary clinic days.

Job Description: 

Student Research Assistants perform clinical research related functions which may include patient-oriented research or research conducted with human subjects. Patient-oriented research includes mechanisms of human disease, therapeutic interventions, clinical trials, or development of new technologies. Clinical Science Professionals may also assist with epidemiologic and behavioral studies and/or outcomes research and health services research. 

The eXtraOrdinarY Kids Clinic and Research Program at Children’s Hospital Colorado is seeking one dedicated work-study student to support ongoing multidisciplinary clinical and research based patient visits. This interdisciplinary team leads the nation in care and research for children with sex chromosome aneuploidies, including Turner syndrome, Klinefelter syndrome, Trisomy X syndrome, and XYY syndrome. The eXtraOrdinarY Kids team includes pediatric endocrinology, developmental-behavioral pediatrics, cardiology, audiology, genetic counseling, child psychology, neuropsychology, sleep psychology, speech therapy, occupational therapy, nursing, social work, research associates, and graduate students. Our NIH-, foundation-, and advocacy-funded translational research program aims to improve the lives of children with X & Y chromosome variations.

Key responsibilities:

Clinic Coordination & Patient Support

• Coordinate multidisciplinary clinic days for Turner syndrome and X & Y chromosome variation clinics, including provider schedules, room assignments, and visit flow.
• Serve as a primary point of contact for patients and families regarding clinic logistics, scheduling, and follow-up communication.
• Assist genetic counselors with clinic preparation, including intake forms, family history documentation, and record review.
• Support patients and families in a compassionate, trauma-informed manner, including those with neurodevelopmental differences.
• Track referrals, consults, and follow-up recommendations across specialties.

Clinical Documentation & Data Management

• Enter and manage clinical and research data in REDCap, EPIC, and internal tracking systems.
• Assist with preparation and organization of clinic summaries, care plans, and patient education materials.
• Maintain accurate clinic metrics, including attendance, specialty utilization, and follow-up completion.
• Support organization of genetic testing records and longitudinal clinical data.

Research & Regulatory Support (Embedded in Clinic)

• Support clinic-embedded research activities, including consent coordination, study scheduling, and data capture.
• Assist with IRB-approved workflows, including document organization and regulatory tracking.
• Coordinate communication between clinical and research teams to ensure protocol alignment with clinic operations.
• Support data abstraction for observational and outcomes-based research studies.

Communication & Team Collaboration

• Communicate effectively with interdisciplinary providers including endocrinology, cardiology, psychology, genetics, audiology, and nursing.
• Participate in clinic planning meetings and quality improvement discussions.
• Respond to patient and provider inquiries in a timely, professional manner.
• Support collaboration with patient advocacy organizations when relevant to clinic activities.

This description is a summary only and is describing the general level of work being performed, it is not intended to be all-inclusive. The duties of this position may change from time to time and/or based on business need. We reserve the right to add or delete duties and responsibilities at the discretion of the supervisor and/or hiring authority.

Eligibility Requirements: 

Current work-study eligibility through the University of Colorado Anschutz Medical Campus 

Ability to work in clinical setting with pediatric patients 

Passing a criminal background check, including the sex offender registry and pre-employment 10 panel urine drug screen

Knowledge/skills/abilities:

• Strong written, oral, and interpersonal communication skills; ability to engage effectively with participants, families, and interdisciplinary teams.
• Commitment to diversity, equity, inclusion, professionalism, and ethical conduct in research.
• Knowledge of ethical research practices, including Good Clinical Practice (GCP) and federal guidelines.
• Ability to coordinate study visits, biospecimen handling, and logistics efficiently while working collaboratively in interdisciplinary teams.
• Ability to work compassionately with individuals with neurodevelopmental differences or behavioral challenges.
• Ability to interpret and implement complex research protocols accurately.
• Ability to achieve proficiency with electronic data capture systems (e.g., REDCap, OnCore) and EHR systems (e.g., EPIC).
• Strong organizational skills, attention to detail, and ability to manage multiple studies, tasks, and deadlines.
• Proactive, solution-oriented, and able to anticipate issues to keep studies on track.

Adaptable and flexible in a dynamic, multi-site research environment, with a strong desire to learn, grow, and excel.

Length of Employment: 1-2 years

Pay Range: $16.22–25.99/hr